Day 54

Today sucked.  Gene and I went to work and got a call from Gala around 11 that K had back pain.  We had Gala massage K’s back for 10 minutes to see if it would help and then by 11:20 had her take some Tylenol.  Nothing helped and the pain seemed to gradually get worse during the day.  We are never sure how to react because at times she gets a flash of pain that lasts 15 minutes and then disappears as quickly as it came.

By 1:20,  K was just miserable.  Dad paged the doctor.  In the meantime we had Gala apply some ice, which alleviated some of the discomfort.  When doc called back, he told Gene this was common from the Vincristine and could also be the Dex.  He asked if she could still walk (I guess this could lead to that???).

I left work at 3:15 to go home and see what I could do.  That damn pit in my stomach rages when she’s in pain.  For her next round of Tylenol, I tried the one with codeine.  We also tried a warm bath.  Eventually, she just passed out.  When she woke up, her eyes were all glassed over and she complained about slight pain but nothing as severe.  Hate codein but it helped tonight.

This evening was more of the same but by 11, she seemed much better.  A full 12 hours of misery for our pumpkin.  The steroids haven’t helped matters because they make her angry and she can be really mean.  Of course I take it personally when I shouldn’t and the pit comes back.  I know she can’t help herself but it still hurts.  Thankfully Maddox was the perfect big brother to her tonight.  He helped where he could and even held her hand to listen to her. He put up with her anger and bossiness very well.

If only today could have been like yesterday.  Cousin Nicole and family came by for brunch and K played the day away.  We even stopped by Jane’s house for a quick playdate at night with Jackie.  All was well – who would have thought things could change so quickly, especially when she didn’t have a treatment or change of meds in days???  Hopefully tomorrow will be better.