Wednesday, September 4, 2013

11 months to go!

Toothless boater

It’s been a while since my last blog, mostly because we’ve been busy living life to stop and reflect.  Kennedy’s upbeat spirit and health amazes us everyday.  Although she still has 11 months of chemo to go, we all know in our heart of hearts that we have won. 

So what do the next 11 months entail?  The ugly pulse of steroids every 16 weeks for seven days – we have three pulses left.  A lumbar puncture (spinal) every 12 weeks, the next one is in 2 weeks and we have a total of 5 left.  Nightly chemo, weekly methotrexate and blood checks, wrap it all up.  Even with all the meds, we know we are at the finish line and finally see the light – how exciting!  The only downside is the patchy hair and the nausea but that too will come to an end in 11 months!

Promoting CureSearch on NBC5
We had a fun summer and last week Kennedy started first grade, she loves it!  She will also start gymnastics and dance this fall.  She is mostly a normal, healthy upbeat kid.  We are still very cautious of germs but have been more lax during the summer.  We definitely have to kick it up a few notches for school as the last cold gave us a week’s sentence in the hospital.  Her classroom is stocked with a gallon of hand sanitizer and tubs of Clorox wipes, just to be safe.

This weekend we will participate in the annual CureSearch walk and invite all of our friends and family to join us.  The walk is in honor of those who have won, lost and continue to battle childhood cancer.  We hold the CureSearch organization near and dear to our hearts because Kennedy’s chemo protocol is backed and funded by them.  If you haven’t already, sign up and join us at those of you that have signed up and/or donated, THANK YOU!!!

That’s all for now.  If you don’t hear from me, assume all is normal – as normal as normal can be.