Happy birthday to our beautiful little 6 year old! What an amazing weekend – getting to
celebrate Princess Kennedy’s 6th birthday. A little over a year ago, we didn’t even know if 6 was
possible, now we know everything is possible!
Things have been normal over the last month, which is
great. Being typical me, I never
have enough time to sit down and catch up. Since my last post, Kennedy had a spinal, some blood draws
and typical LTM procedures. Maddox
went to her last spinal procedure and got a kick out of Kennedy waking up from
the Ketamine. I think she told him
she loved him at least 20 times and ensured him that he had 4 eyes and 2 noses. Kennedy is keeping up with gymnastics
and dance and has been doing very well in school. Can you believe she reads at a first grade level? This too is amazing as chemo brain
often causes learning disorders.
Shortly after my last post, our 13-year old floor friend
Tyler passed away, as did 3-year old Jordan . We were able to pull off an amazing experience for Tyler the
Thursday before his passing. I am
grateful for everyone who stepped up to make his last days with his family
amazing. I only wish I could have
done more and was secretly hoping that a little happiness would somehow save
him.
