Day 31

K sleeping off the pukeys

It’s funny how when Kennedy is giggling and acting normal, we forget how sick she is and that cancer has invaded our home.  Today we have been reminded.

We never made it to Build-a-Bear yesterday since she was so exhausted.  Instead, Mom, Dad and Kennedy took a nap while Maddox played at Riley’s house (thanks Kim!).  At night, she ate super light and passed out early.  She was super fatigued and not herself.

This morning K woke up with severe leg pain. Since she didn’t have a fever, we gave her some Tylenol and the pain subsided.  She ate breakfast and went back to bed.  Maddox and I went to the Y for our classes and stopped at the store on the way home to pick up some “K” essentials.  When we got home, Gene was dealing with pukeys.  K had thrown-up all over our bed.  She threw up so much, it went right through our mattress. She was feeling awful.

Gene put her in her bed and brought her some gingerale.  I tried giving her Zofran (for nausea) but that all came back up within 15 minutes.  She finally got a little rice down and we spent a half hour reading her Cinderella.  Dad and I took turns staying with her.  At one point she watched a bit of a movie and colored. Eventually K and dad took a nap and I fell asleep in Maddox’s room. 

Thankfully, in the midst of all of this, Jane picked up Maddox for a play date/sleepover with Alek (thanks Jane!).  I asked her to come early so we could focus on K without him feeling left out.  He left at 12:30 this afternoon and we miss him already.

Now we wait.  We wait for her to feel better.  We wait for her test results and we wait to learn about her new protocol.  793 days to go.