Day 32

Last night remained bad until about midnight.  Finally K was able to keep down some Zofran and she felt normal and was giggly until around 1am until she finally fell asleep.  We were afraid sleep wouldn’t come for her since she slept all day and felt so awful.

K woke up okay but then complained of severe pain in her spine, near her neck.  Again, no fever so we gave her some Tylenol.  After eating a little for breakfast, she was nauseated again so we gave her Zofran and that seemed to help.  She jumped in the shower and hung out there for about an hour.  After all the pukeys yesterday, chocolate ice cream no longer works as a good mixer for her meds so we’ve switched to mint chocolate chip and were able to get her meds down.

Kennedy and Emily and their puzzle

Stephanie came by today with Emily for a play date.  We made cookies, dyed eggs and worked on a puzzle.  It was a nice afternoon and K kept up nicely.  It was nice to see her interact with someone her own age.  She wasn’t as social as she normally is and it took forever for her to actually talk to Emily but finally, they played like kids should.

Grandma came by later and helped me complete my kick of ultimate organization.  Something has gotten into Gene and me, we have started organizing and cleaning like crazy.  I guess it makes us feel we can control something since we feel like we no longer have control of anything.  Gene was installing shelves and cleaning his workroom and I disassembled and reassembled both kid’s rooms along with the basement playroom.  Getting closer to finishing, one more weekend I think.

Grandma and the kids dying eggs

Maddox came home around 7pm from his night with Alek.  They went everywhere – swimming, the movies, out to eat….and the list goes on (thank you Jane, very much!).  It was nice to see Maddox so happy.  As awful as we feel for not spending time with him, we know we can’t compete.  When K is sick like she was the last day and half, the house needs to be quiet.  We know he tries so hard to get our attention but we are so preoccupied, it is hard to give him the feedback he deserves.  It’s also not fair to him to keep him cooped up at home asking him not to be a wild, crazy and fun kid.  Being out and about is the best place for him until the chemo side-effects wear off (hopefully over the next day or so).  

When Maddox came home, K was feeling pretty good.  We all dyed more eggs, he read to us, we read to him and he crashed from exhaustion.  Later in the evening, K complained of the neck pain returning and some nausea so she had another dose of Tylenol and Zofran.  Another big change is that she barely eats, dinner consisted of rice and a piece of bread.  What a change from only a few days ago.

Gene and I both have work tomorrow so K will be with Gala.  Hopefully Thursday's chemo will wear off and K will have a happy, fun and pain-free day.