Day 17

Some people are so ignorant.

Last night before bed, I had Kennedy accompany me to the Bear Necessities lounge for her late night snack.  In the lounge was a lady that noticed Kennedy’s hair and asked what she had.  I said…”she has Leukemia, but don’t worry, the hair loss means she’s beating it”, (probably more for Kennedy’s sake than mine).  She goes…”Oh, my friend’s son had that but they lost him”.  Really?  Did she really say that?  So I responded back, “ALL has a 90% cure rate so I’m not too worried.  Sorry about your friend”.  What I really wanted to say was “F-you, how dare you say that?”  What is wrong with people?  This isn’t the first time either.  When one of my vendors found out about Kennedy; he said he was sorry and went on to say he just lost his mom from cancer so he understands.  Again, really?  Enough time on ignorance…

Kennedy woke up feeling okay but after her nap she felt sick.  She had pain behind her left knee when she walked, abdominal pain and some nausea.  She was HOT.  Gene took her temp with our thermometer and got a 38.1 – CRAP!!!!  But when we called the nurse, their thermometer read 99.7 – THANK YOU GD!

Thanks to a suggestion from a new friend we met through the Child Life specialist, Kennedy will be getting a Build-A-Bear every time she gets a pokey.  We built our first one last night online.  Friends take up stock…we will be investing weekly when her port is accessed.  After they had to de-access and re-access the port this afternoon, low and behold, we built another.

Cousin Nicole came by today with some hats – K looked adorable.  I also got a full 20 minutes at the Loyola gym, it helped to get out for a bit.  Dad let me borrow his gym shoes since I didn’t bring any – a little big but not too bad.

Grandma brought Maddox for a visit and my germaphobia nearly did me in.  Wow – boys are definitely gross.  I had Maddox sanitize at least 10 times because of his hands in his mouth or other parts of his face.  I feel so bad making him crazy but he really needs to make a change for the family or we will be in the hospital for fevers a lot over the next 2 years.  I witnessed a big oops of my own today when I saw Kennedy grab my water bottle and take a chug of it instead of her own.  I grabbed it immediately and made her rinse with mouthwash. I am praying we won’t see a fever because of it tomorrow!

 

 Dad took Maddox out for dinner and went home with him to get prepared for his wrestling meet tomorrow.  Kennedy, Grandma and Mom hung out for the rest of the evening and I got my first hair cut, compliments of Kennedy.  I still owe her one more so I will be going a bit shorter.  Who cares, it’s just hair…it will grow back for both mom and K.