Day 10

Back in the hospital. 

The morning went OK.  K slept with daddy. Mommy (who now has a cold) slept alone and got the first full night’s sleep in 9 days.  I convinced Kennedy to come downstairs for breakfast and daddy made her a big Mickey Mouse M & M pancake.   She had 3 bowls of Cheerios and pancakes and was a GREAT sport about meds.

Maddox came home from Grandmas and definitely brought happiness into the house.  He was so sweet to his sister and they spent some time playing with Kennedy’s new toys on the couch.  Aunt Julie spent sometime reading a “my sibling has cancer” book last night and I think he it is starting to sink in.  Maddox has a runny nose like mom so we both donned some fancy yellow masks all day.

Kennedy was pretty miserable after Maddox stopped entertaining.  K and mom took a nap from about 1-3 and Kennedy woke up with some tummy pain, which subsided after a nice belly rub.  Daddy was out buying a new thermometer and baby monitor but when he came home, K and daddy went for a nap too.  Maddox went to his buddy Alek’s house to play.

Mom and Aunt Julie went to the gym, which was nice because I needed to sweat out this cold and burn off some stress.  By the time I rented some movies for K and picked up dinner, K was in bad shape.  She was confusing grandma for mom.  Dad took her temperature and she was at 100.3 – almost worthy of a call to doc.

We tried to get her to take a quick bath or shower since she hasn’t been able to do either since the port was accessed.  We ran the shower and she was having a fit so we tried a bath instead.  She was so confused and thought areas of the bath were hot, then cold then she thought the water was draining when it wasn’t.  She was screaming and crying and barely making sense.  Her skin and senses are so sensitive, it is painful to watch her.

We gave up on the bath and put her back in bed and then the thermometer drama began.  Three different thermometers, three different readings - 101.1, 98 and 99 degrees.  The new one read 100.7, 100.6 and then it went down again.  Finally, Auntie Julie went out and bought a good old fashion thermometer that read 100.6. 

We paged the doc and were readmitted.  We arrived at Loyola at 9:30 at night.  Normally, they would need to draw blood from the port and from a clean site (which means being poked, again).  I think that since we had thermometer drama that the doctor knew about and her temperature was 99.7 at admittance, he ordered the port draw and will then decide if a clean site is necessary based on how it comes back.  Whew – we avoided “pokey”, at least for now.  Now we wait.