Day 14

 Her hair is falling out….fast.

Written by Daddy Gene:

Noticed her hair is falling out last night. We slept most of the night, woke very up hungry. Cheerios for breakfast, what else? Doc Manera came in around 8:30 am checking up on her. White blood count is low, but expected. Probably will get blood tomorrow. Over all he is very happy with all K's results. Infection docs were also there, everything seems ok so far, however we will be administering antibiotics once we are home and a home nurse will come and show us what to do. Scary.

K and me played and ate all day. I tried to space feedings as much as possible, but most of the time I was very unsuccessful. Went for a few walks in the hallways and did many art projects.

Written by Mom:

I got to the hospital around 6ish and was shocked about the hair.  I expected her hair to gradually fall out but clumps came out from all over, it wasn't like that yesterday.  Dad had to leave right away because Maddox is now home sick with a tummy bug.

Kennedy of course was an eating machine.  She didn’t stop eating from the time I arrived until the time she went to bed at 10:30!  We combed out her hair to remove the pieces that were falling out.  We also played with the Barbie hair she HAD to have.  The extensions entertained her for about a half hour…if only she knew how much time it took to print each extension out at work today (long story – but don’t buy them!!!).  

Grandma came to visit at night and I let Kennedy cut her own hair.  It is something she always wanted to do so I figured why not? It’s all coming out anyway so she chopped away.  She didn’t do too bad though she refused to look in the mirror.  I made the hair loss a celebration of her beating cancer and winning.  The hair she is losing is cancer hair and the hair she will grow back will be cancer-free.  She seemed OK with that and celebrated a bit with me but she is also very sad.

Auntie Kora will be donating Kennedy’s new hair.  Now we just need to figure out if a wig is the way to go or a wrap with hair attached AND where to get it done.  Anyone know where to go locally to have something made?

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