Days 113 – 116

Overall we had a great weekend and Kennedy handled the steroid well…until this morning.  We had a 6am wakeup call of back pain, we gave her an ice pack some Tylenol and she went back to bed.  When she woke up again at 8am, the pain was still bad so we called the doctor to determine if we could give her aspirin based on her last platelet count.  Luckily we got the go ahead which saved us/her from trying morphine.  I stayed home to make sure all was okay and we had a good day lying in bed.  We also went outside for a while and I read her a book on the trampoline and after we stared at the trees and clouds and just chatted.  It was a great mommy-daughter day.

This weekend we were on the go.  We did some shopping, hosted and attended play-dates, had dinners with friends and even made it out on the boat.  I must admit boating is a lot more stressful these days.  Not only do we need to make sure we have the right food and supplies with us but we also need to plan out the meds and timing.  We haven’t trailered our boat in years so pulling it out of the water at nearly 11pm was a bit of challenge.  Yes, I said it….11pm.  We got out on the water at 3pm and Kennedy was having such a good time, she wanted to go eat at our restaurant on the chain for dinner and when all was said and done, 11pm.  

We stopped by our old marina where our trailer was last year.  The new owners built a deck and screened sunroom, it looked amazing.  It was sad knowing we wouldn’t be spending our summers there anymore.  We also saw our neighbors Dave and Janie.  Dave finally retired last year and was diagnosed with liver cancer this year.  It was sad to see both him and Kennedy together with their bald heads and distended tummies (although Dave has always been bald).  They both had the infamous look of cancer.  It’s odd how cancer patients have a similar look.  I’m not sure if it’s the disease or the treatment that makes it that way.  Anyway, it was sad thinking back to last summer compared to the beginning of summer 2012.

Kennedy received her Make-A-Wish folder in the mail today.  It is something we are all looking forward to when we near the end of her treatment.  Maintenance is less than 2 months away and then only 2 years to go until she’s free of the port.  I see a light at the end of the tunnel and although it’s still a long ways a way, it’s sooner every day. 

PS...I know I owe some thank you cards for gifts and K's birthday...I promise, they are coming soon.