Day 111 & 112

Pre-k end of year picnic

Thursday morning we had clinic at 8:15 am and it was also the first day of the steroid pulse.  All was going well, we got up early, gave K her meds and almost made it to clinic on time.  We were stuck in a bit of traffic and about 5 minutes away, K threw up from the steroid in the car.  Thankfully she kept it down long enough (40 minutes) that we didn’t have to give it to her again.  I went in to clinic with K and dad went to go clean his car.  K’s counts were good (790) so they gave her the Vincristine.  Kennedy didn’t even flinch when they accessed her port.

Post clinic K had a playdate with Emily and then went to her farewell preschool picnic at night.

Holding Daddy's hand while he
gets a pokey

Today we hosted our first blood drive and it went great.  K went to work with me in the morning and finally got to see dad get his pokey.  Friends and family from all over came which was a humbling experience.  People who swore they would never get a pokey did anyway for K.  All together, 54 pints of blood were collected between 11am – 6pm.  Next blood drive is on Friday, June 15 from 11am - 6pm.

I got home from Vegas late on Wednesday night and am happy to be home.  I had a tough time being “on” in Vegas.  The convention is a big networking event and I could barely function, I just wasn’t mentally there but it was still nice to get a break.  Dad did great when I was gone, working with both kids on homework and getting them to bed on time. 

Overall this week has been good.  We may try and take K on the boat this weekend depending on how she feels.  We’ll see how it goes – right now it seems a bit overwhelming.