Days 94 - 100

Not much to report. Kennedy is living the life of a normal 5 year old.  She’s been busy with her clinic visits, play dates and just being an active 5 year old.  We are enjoying every second of normalcy because we know she has an admit this Thursday followed by an awful steroid pulse with Vincristine the week after.  It’s hard to blog while keeping up with her; she has had more energy than all of us lately.  Add that to work, Maddox’s baseball schedule, my insane workout schedule and it makes me a very bad blogger so I apologize for not keeping anyone up-to-date.

This week consisted of clinic, build-a-bear, Rainforest Café (all the normal post clinic fun), a trip back to her old pre-school, a movie, a play date with her BFF Sofia, Maddox's baseball games, some parties and a salon visit.  It’s always a delicate balance of how much she can do versus how much we should let her do.  So long as she is up for things, we hardly say no.  We just chase her around with sanitizer or mask her and the options are limitless.  She even spent time jumping on a trampoline this weekend which shocks the docs in that she hasn’t experienced “foot drop” from the Vincristine.

This week at the park, Kennedy was asked why she was bald, she said “because I have cancer”.  She was very matter of fact and went right on playing, didn’t bother her a bit.  She was later asked when visiting her old preschool why she was wearing a mask and said the same thing with an added “and I don’t want to end up back in the hospital”.   She could break down and cry that she’s different, that she’s bald, that she has to wear a mask or that her mother chases kids around with sanitizer but she doesn’t. Her strength is my strength; she’s a cool kid.  I love weeks like this.