Day 69

Not too much to report – thank goodness.  The mouth sores have reappeared with a bit of nausea this morning but otherwise, Miss. Kennedy is in good spirits.

We had a great rest of the weekend.  On Sunday, Kennedy insisted on going on an egg hunt because Maddox went on one with Anthony over the weekend.  On Sunday morning, I went to Jewel and bought plastic eggs and candy.  Maddox and I stuffed them and Kennedy had her own private egg hunt in the living room.  In the afternoon we were invited to a friend’s for the holiday and had a fabulous time (thank you Marci and Gene).   Since there were four kids in the house, we kept all the kids sanitized and Kennedy wore a mask whenever she was playing near the boys.  So far so good.  Not big on taking risks (not that risky with all the precautions I took) but she needed this and so did we.  Kennedy was so happy and it was great to see her acting like a normal kid.  Kennedy spent the day hanging out with Gina and Molly and couldn’t have been happier being with older girls.

Monday was uneventful, K stayed in bed all-day and relaxed while Gala catered to her in our room (every meal in our bed = lots of crumbs in bed).  I wanted Kennedy to catch up on rest so I told her to lie in my bed all day and she totally took advantage. 

Today was good too which marks 48 hours from her last play date.  Now my concern is that Gala is sick with a bad cold.  She was wearing a mask when I came home today but she didn’t even realize she was sick until the allergy med didn’t kick in and her back, arms and joints starting hurting mid-day.  Who knows if K was exposed but I’m praying not.

Thursday’s clinic is optional.  There is no chemo but we can take her in to check her counts and find out if she is neutropenic.  She was pretty low before the last treatment and I’m sure the chemo has done its job knocking it to the nadir. Kennedy says “yes”, she wants to have the blood test so she can have play dates (she’s on lock-down this weekend).  Mommy thinks “no”, I don’t want to unnecessarily expose her to sick kids in the doctor’s office or an extra pokey.  Miss. social hates not being out and about or hanging out with friends. Not sure what to do.

Kennedy also wants to shave her head.  She saw the bald spot that covers most of her head in the mirror and says she just wants to shave the rest off.  Dad and I are against it.  The little hair she has is around the front and side of her head and looks cute under bandanas and hats – sometimes we can hide the fact that she is ill and avoid stranger looks, pity and questions.  Trying to postpone this one because the chemo she is on may allow her to keep her hair, although it has become scarce and very thin, she may still have some.