Days 73 - 76

Kennedy and Sofia

Nothing much to report.   Kennedy had a play date on Sunday with Sofia and we went out to dinner that evening to celebrate Uncle Sergey’s birthday.  For now, Kennedy is acting like a pretty normal 4.5 year old.  She has also been chemo free for 2 weeks so it’s nice to see her “normal”.  She’s goes in for a blood draw this Thursday and is then admitted next Thursday for another 3-day stay.

Kennedy is becoming very spoiled which is normal I guess.  Who can say no to that cute little face?  Her latest demand was that our nanny feed her upstairs in bed while she pretended to be a baby.  She capped off her demand with  “you can’t say no to me, I’m a baby”.   She also demands that I sleep with her most nights.  She’s become a total night owl and sleep is scarce for me these days.  I’m exhausted. Kennedy’s play has changed a bit too.  Half of her build-a-bears now have ports which need to be flushed daily.  She’s taking on the roll of doctor and seems to like it.  It’s very cute to watch.  For now, when she grows up, she wants to be a “kid doctor”.  I guess her experience isn’t as bad for her as it is for me.

We met with the principal of Kennedy’s school today to discuss her entering kindergarten in the fall.  We are the first case of leukemia that the nurse or principal can recall in at least 10 years.  There is a lot of prep work for Kennedy but they seemed ready to handle it all, including sanitizing the room and educating the incoming students about her condition. Her teacher will be Mrs. Kehm who Maddox had.  We adore her and trust that she will do a great job protecting Kennedy.  Some parents or oncologists choose not to send kids to school while on maintenance chemo because of the risk for infection.  Others have a completely different view, which match ours.  We will do what is best for Kennedy taking every precaution necessary.  Kennedy is a social butterfly and needs school to be around kids.  It’s just who she is.  

Going to crash while I can.  Kennedy is still up playing, I wonder if she’ll let us sleep tonight??

Maddox made breakfast in bed for K