We visited Loyola on September 20th for Kennedy’s quarterly
visit. Being three years out of
treatment, her scheduled appointments will now move from quarterly to every 4
months. Another mark of progress, each
year, another month added between follow-up visits.
Dr. Suh was happy to see Kennedy and she loved to see
him. Thankfully, all is good and she’s
growing (fast). Her favorite nurse
Christa wasn’t there to take blood and I thought she would panic but she played
it cool. She loves to watch the needle
go in; I would be totally sick but she gives it no mind at all.
Kennedy has definitely blossomed this summer; she has grown
several inches and is looking more and more like a teenager than a little
girl. This is bittersweet. I’m so happy to enjoy her growing up but I
want just a little longer with her sweet little girl persona (versus her new,
hormonal Sybil temperament). Although
only 10, she has turned into a pre-teen, full of attitude and uncontrollable
emotion with a figure to match.
While at clinic, there was a little boy screaming bloody murder in an adjacent room. Hearing him made my heart break. I didn’t know if they were accessing his port, if he was newly diagnosed or if he was just deathly afraid, but it brought back a flood of memories. The screaming reminded me of Kennedy’s diagnosis day and them trying to get an IV in. We had to hold her down while she screamed, and in the end they failed after several attempts. All the memories I buried deep inside came rushing to the top. I hate cancer, I hate clinic and I hate that Kennedy had to suffer. Returning to this place every few months makes me face what I try to forget every day. With that said, I love that she is healthy, I love her doctors that got her healthy and I’m happy she is a vibrant, kind and hormonal pre-teen.
The CureSearch walk was this weekend. Our team raised over $8,000 in benefit of
CureSearch and I am thrilled. Our fundraising seems to decrease year after year
as we move further away from the diagnosis.
Although I wish I could do more, there are so many families afflicted
with other diseases, natural disasters and important causes to support. I am
grateful that in aggregate the Chicago walk brought in over $120K to fund
Childhood Cancer Research.
The walk was both an uplifting and heart wrenching
experience. The children in-treatment
and those that are cancer survivors were honored and adorned with a ribbon,
Super Heroes (both children and characters) were all around and face painting
and kids activities kept everyone in good spirits. Kennedy’s best friends came to support her, as
did our own friends and family.
For the families of those children no longer with us, the
mood was somber. Each child that lost
his/her battle was remembered by family who walked on to the stadium field
holding an 8x10 photograph. Doves released at the end of the ceremony had us
all sobbing. I don’t want to imagine what these parents experience every day. I give them all credit for showing up year
after year, trying to raise funds for other families that still have hope.
Childhood Cancer Awareness month is almost over but everyday
more than 43 children are diagnosed with cancer. Just because September is coming to a close,
it doesn’t mean the foundations that support childhood cancer research stop
needing funding. If you haven’t already
done so, please consider donating to CureSearch at http://www.curesearchevents.org/site/TR/CureSearchSuperheroesUnite/CureSearchSuperheroesUnite?team_id=2752&pg=team&fr_id=1461
Edan Gelt
Way to go Princess Kennedy!
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