CureSearch Walk

Kennedy started kindergarten, a life occurrence we didn’t think would be possible 7 months ago.  We’ve come a long way.  Maintenance is not the cakewalk we thought it would be but it is one step closer to kicking cancer’s butt for good.  Kennedy now has morning sickness every day and her first few days of kindergarten were hell to get her out of the house.  Thankfully, a simple dose of Zofran nightly along with her oral chemo seems to do the trick for now.  If we had any concern that the nausea first reported 2 weeks ago was the flu or anything else, we are now pretty sure the oral chemo build-up is the culprit ,which is good and bad.  Good that it is not anything more serious, bad that we have 2 years of this left.

Other than her daily nausea, we’ve been living life hard.  We take our kids everywhere and live life to its fullest. 

Yesterday was the CureSearch walk and we are privileged to know so many wonderful and kind people.  The generosity seen from friends, family, acquaintances, colleagues and clients to help such a worthy cause has been humbling.  An old friend donated his dad’s birthday gifts to the cause.  His dad has also been battling cancer and just turned 70, they felt Curesearch was a good place for the gifts to go since no kid should have to go through what his dad has.  One of my best girlfriends got her whole workplace to kick-in to make her the single largest outside donor of our group.   There are so many stories of generosity it would take pages to list.  I am grateful to all the friends and family that came out to walk and give up their time early on a Saturday morning to support us in our battle. I am also grateful to those who couldn't make it to the walk but still contributed, every bit helps.

The walk was hard, not physically but mentally.  Walking from the parking garage to the event was overwhelmingly emotional.  Seeing the balloons released by all the families that lost a child or reading a poster about a little girl who died from AML at 11, was hard to digest.  I know I say it often but we are one of the lucky ones.  Kennedy’s cancer has definitely given the entire family a new perspective on life.  We know what matters, who are friends are and appreciate every chance we get to enjoy our life and everyone in it.

I am not numbering days on the blog anymore because it is honesty just to hard to keep up.  We are 7 months into treatment and have 23 months to go.  We are almost 25% done with stupid cancer.