Saturday, August 11, 2012

Days 184 191



At Big Time Rush
It was a great week for Kennedy.  Her moods were still all over the place for the first few days after she stopped steroids but slowly she has turned back into our sweet little angel.  She had a great time at the Big Time Rush concert last Saturday and due to the crazy weather that night, her Bear Hug lasted from 4pm – 12pm and included a power outage and an acoustic performance by the band when we were rushed back stage to stay out of the torrential downpour.  It was quite the experience and we are grateful to Bear Necessities Pediatric Cancer Foundation for their program that allowed Miss. K to do this.

At Museum of Science and Industry

This past week I took the kids to the Museum of Science and Industry and dad hung out with Kennedy and took her to Pirate’s Cove and Miniature Golfing.  Both kids have been through a lot and it is nice to be able to spend special time with them.

At pirates Cove
On a very somber note, we said good-bye to a friend this week.  Last year we got to meet an amazing family that were neighbors to us at our new trailer.  Dave Rivera was diagnosed with liver cancer just one month after Kennedy was diagnosed and he passed away yesterday.  We will miss him dearly.

There is no cure for cancer but we are working on finding one by supporting CureSearch.  September 8, 2012, our entire family is participating in the 2012 Chicago CureSearch Walk to raise funds for children's cancer research. Every day, 36 children are diagnosed with children's cancer – 7 of these children will not survive; cancer is the leading cause of death by disease in children. Although the cure rate is now 78%, up from 40% over the last 20 years, it is not good enough. Our goal is a 100% cure rate and we need the assistance from our family and friends to help make this possible. 

To participate in the September 8th walk or to make a donation, visit our team web page at



We would love if you would walk with us, kids are welcome too!!!

2 comments:

  1. So glad she had fun at her Bear Hug! Thanks for the Cure Search Reminder. I am going to post it now on my blog :-).
    Much Love~K&E

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  2. Glad to hear she's feeling more like princess K again. I hope you guys get to enjoy a little down time from meds and can't wait to hear about her start to kindergarten!!! Big hugs to you all, s

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