 |
| Toothless boater |
It’s been
a while since my last blog, mostly because we’ve been busy living life to stop
and reflect. Kennedy’s upbeat spirit and
health amazes us everyday. Although she
still has 11 months of chemo to go, we all know in our heart of hearts that we
have won.
So what do the next 11 months entail? The ugly pulse
of steroids every 16 weeks for seven days – we have three pulses left. A lumbar puncture (spinal) every 12 weeks,
the next one is in 2 weeks and we have a total of 5 left. Nightly chemo, weekly methotrexate and blood
checks, wrap it all up. Even with all
the meds, we know we are at the finish line and finally see the light – how
exciting! The only downside is the
patchy hair and the nausea but that too will come to an end in 11 months!
 |
| Promoting CureSearch on NBC5 |
We had a
fun summer and last week Kennedy started first grade, she loves it! She will also start gymnastics and dance this
fall. She is mostly a normal, healthy
upbeat kid. We are still very cautious
of germs but have been more lax during the summer. We definitely have to kick it up a few
notches for school as the last cold gave us a week’s sentence in the hospital. Her classroom is stocked with a gallon of
hand sanitizer and tubs of Clorox wipes, just to be safe.
This
weekend we will participate in the annual CureSearch walk and invite all of our
friends and family to join us. The walk
is in honor of those who have won, lost and continue to battle childhood cancer. We hold the CureSearch organization near and
dear to our hearts because Kennedy’s chemo protocol is backed and funded by
them. If you haven’t already, sign up
and join us at http://www.curesearchwalk.org/faf/search/searchTeamPart.asp?ievent=1058084&lis=1&kntae1058084=F70025518FDD409DADF81E21D1E85F49&team=5473560For those of you that have signed up and/or donated, THANK YOU!!!
That’s all
for now. If you don’t hear from me,
assume all is normal – as normal as normal can be.
