Kennedy finished her steroid-round and had chemo on
Wednesday, the day before Thanksgiving.
Maddox came with us to clinic and we were glad he did because it was a
long day; we got in at 9am and finally left close to 1pm. Maddox kept us entertained.
Kennedy gained 4 lbs in one week from
the steroids, nearly 10% of her body weight. The weight gain resulted in Dr. Manera wanting to up her
nightly 6MP (mercaptopurine) oral chemo for her new “surface area”. The goal is to have the kids on the
maximum tolerable dosage. Sounds
nice right? Tolerable? Tolerable is a good word since the
medication keeps Kennedy nauseated most of the time, I couldn’t imagine giving
her more.
I can’t believe I did what I did but I actually negotiated
with Dr. Manera. I told him I would make sure Kennedy got her weight down to
pre-steroid weight so the increase wouldn’t be necessary. We would need to trim the weight in 3
weeks; much harder than it seems. One week on her diet and she’s actually
gained almost another pound. Poor K, my stalling
tactics won’t survive the next visit and her 6MP will most definitely be
upped. Stupid cancer.
Maddox’s birthday fell on Thanksgiving this year. Since we didn’t know how Kennedy would
feel after chemo and from her roid withdrawl, we decided to celebrate at
home. We felt being home would be
the most comfortable place for her and also a place we could focus on Maddox
turning 8. Grandpa, Grandma and
Uncle Sergey, spent the day with us.
By Saturday, all was seemingly normal again and K lost her
roid rage and became a complete doll again. We had our family photo shoot on Saturday (THANKS LIDIA)and
Sunday K got to celebrate Maddox’s boy-birthday party with him at Laser tag. Being the token girl, she had the time
of her life. On Monday, I unfortunately got
the flu so am on lock-down.
Praying that everyone stays healthy!!!!